Well today we made the move from PICU on the 5th floor to the surgery unit on the 3rd floor. This means that we were able to get Gabrielle completely of the Dexmedetomidine... YAY!!! We don't get as much nurse attention here because they round every 4 hours instead of every 2 hours. But hopefully it will give her more time to rest and perk up a bit. She still isn't talking to us much... just a few words here and there. I think she is pretty comfortable pain wise as long as we stay on top of her Morphine PCA and they are now giving her Methocarbamol and Ativan around the clock. She also gets doses of Tylenol as needed. We are sitting her watching Brave for the third time today. All of the rounds have been made today and everyone seemed pleased with what they saw. Urology said that we could start placing a pillow under her back and rotating her slightly from one side to the other. Pain management said that they would really like to switch her to oral medications instead of IV. Oral medications have a longer life in your body than IV medications do so she would get better and longer pain relief. The only problem with this is that she won't drink or eat anything. Dr. Alam says that this is common and that there is a possibility she would have to have her NG tube put back in to start being feed liquids through it.
So this is our prayer request tonight... we NEED Gabby to take something, anything by mouth. Please put all of your prayers toward that, we really don't want the NG tube placed back in. Your other prayers have worked thus far so please continue to pray for her. Thank you and we love and miss you all!
Gabrielle Gossip is a blog page set up to update our friends and family on Gabby's condition. Gabrielle was born with a major birth defect called OEIS or Cloacal Exstropy. It is an extremely rare birth defect only affecting children 1 in every 400,000 live births. Cloacal exstrophy affects the organs of the abdominal area (mainly the bladder and intestines) where they are displaced to the outside of the body cavity. The birth defect is fixed over the course of several surgeries.
Continuing to pray for Sweet Gabby, her sweet parents and sister!!
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