Well we have had a really busy day. You would think while we were in the hospital that the days would drag and be uneventful but I feel like we are constantly running out of time each day. Gabrielle rested pretty well last night so that started our day off good. The air conditioning in our room wasn't working so we moved rooms, so know we are nice and cool. After changing rooms we ordered breakfast and she ate 1 egg and drank about 4 oz of pediasure. We learned that she has met the limit of days that Ativan will help her. She was extremely irritated after this mornings dose so that is one more drug off her list. Then we had rounds from pain mgmt, urology and nutrition. Dr. Alam with urology said we have till Monday morning to get her up to 1100 calories a day before he will resort to a NG tube. So at least he is giving us the chance to get there, he also reassured us the NG tube would not be a permanent thing. Pain management has released her and now all of her medications are being changed to oral... YAY!! Our goal now is to start stepping back on all her medicines except the Ditropan for bladder spasms. The plastic surgeons fellow stopped by and removed their drain tube... one less tube! So then came lunch, it was going well but after we gave her oral Ditropan and Tylenol she threw everything she ate up :( thankfully our only setback of the day. After cleaning up that mess we got to get out of bed... HALLELUJAH!!! What an amazing event!! It took Bart and 3 nurses but we got it accomplished and then we were off. We went downstairs to meet Gabrielle's friend Natalie and her mom Kim. Natalie and Gabby are the same age and born with the same birth defect. It is a great feeling to meet people like Kim & Natalie and Jill & Isaac, whom we met earlier this week, because it gives Bart, Gabby, Avery and I are not alone. Natalie was completely adorable and she and her mom brought Gabby a present. After meeting them we came back up to the room and Bart and I each had a turn in holding Gabrielle for the first time since last Tuesday... AHHMAZING!!!! I couldn't help myself I started crying and Gabby told me not to be sad. I explained to her that I was so overcome with happiness that I cried. What an incredible day of ups we have a had and I know that our Lord and all of your prayers are the reason it happened. Bart and I are on cloud nine right now.
She was a little nervous about the first wagon ride.
Gabby and Natalie meeting... doesn't that smile just say it all!
Bart holding Gabrielle for the first since surgery.
My turn to hold Gabrielle today.
Today I do ask you to continue your prayers for Gabby's appetite to increase but more importantly I want to lift another child up in prayer tonight, Carter Cline. Gabby's friend Carter had the same surgery but his hurdles to get past have been greater than hers. He has many days in the PICU at John Hopkins Hospital and his pain has been immense. His intestines are not responding well to the medications he has been on and his vomiting a lot. God gives us all a journey and Carter's is filled with mountains that he and his family much climb. Please lift this incredible family up in prayer.
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